Video Interview from HIMSS12

For those looking for the Women in HealthIT video, see:

http://t.co/pfbTB59K.

What has now become an annual event: an interview between Liza Sisler from Perficient and me at HIMSS. This year, I talk about 1the effect of Accountable Care Organizations (ACOs) and value-based purchasing in general on the healthcare industry and the underlying theme of trust and security in health information exchange.

http://blogs.perficient.com/healthcare/blog/2012/02/27/himss-2012-interview-with-janice-mccallum-phi-and-patient-trust-video/

I’ll post more on the topic of trust and security of personal health information (PHI) soon.

Gleaning the Future at HIMSS12

In my write-up of HIMSS11, I summed up the theme of last year’s event by describing how the need to meet Meaniningful Use (MU) stage 1 requirements had produced the foundation for all sorts of value-add applications and analytics. Dashboards that illustrated how providers were ready for population health analysis based on stage 1 MU measures were on display everywhere.

This year, I’ll be on the lookout for higher-level dashboards and will have a specific interest in learning more about health IT software that helps bridge the business and clinical sides of medicine. After all, with accountable care organizations (ACOs) on the horizon, providers will need to establish links between their clinical performance and their financial performance. It sounds strange, but it’s not really a stretch to say that providers have to worry about how clinical outcomes affect their bottom lines for the first time in a long time.  

Staying focused at HIMSS is difficult. There’s an excess of topics being discussed in education sessions, too many exhibitors for any one person to visit (approximately 1,100) and so many people to meet up with that it’s impossible to see it all and it’s very easy to get distracted. But, with a core set of meetings and sessions that cover clinical decision support, analytics, and collaboration between stakeholders, I’ll try to stick to my plan.

Please contact me if your company has something new and interesting in clinical decision support or business intelligence solutions that align clinical and financial performance. My schedule is already packed, but I’m prepared for a week of sensory overload!

Realizing the Potential of Personalized Medicine

Imagine a world where we’ve all had our complete genome sequenced and where every individual can receive real-time feedback on how their actions and environment affect his or her body. Drink an espresso and understand the effects it has on your heart rate, endocrine system, etc. With a growing base of genomic knowledge contributed by billions of people (yes, this requires a very large N), this scenario isn’t science fiction. But, it does require that health IT progress at a faster rate in order to meet the needs of predictive personalized medicine models.

The MIT Enterprise Forum hosted a fascinating panel discussion on the future of the personal genome last evening (Feb. 8).  Hosted by Kevin Davies, editor-in-chief of Bio_IT  World and author of The $1,000 Genome, the panel included Dr. George Church of Harvard, Colin Hill, CEO of GNS Healthcare, Jamie Heywood, Co-founder of PatientsLikeMe, and Dr. Michael Pellini, CEO of Foundation Medicine.

The advancements in treatments made possible through understanding an individual patient’s genome are awe-inspiring. With specific examples from cancer therapies, Dr. Pellini described progress we’ve made in moving from a trial-and-error approach to treating cancer toward models that take the genomic and molecular structure of an individual’s tumor into account before narrowing down the treatment options to home in on the optimal therapeutic “cocktail”.

But the discussion underscored that the continued lack of real-world outcomes data to help build models of what works remains a big hurdle in advancing personalized medicine. Recording and aggregating outcomes data are the domain of EHR and EMR systems, in other words, the world that will be convening at HIMSS in 10 days. (See accompanying post)

The rates of adoption of EHR systems that have sufficient functionality to facilitate personalized medicine are too low and some doctors still complain that they don’t see enough benefit in transitioning from paper to electronic records.  Clearly, it’s not the patients’ benefits that these naysayers are considering! Granted, current EHR platforms have a ways to go in improving their usability, functionality, and interoperability. And there’s still too little emphasis on the importance of providing data directly to patients and accepting patient-reported sources of data. But, the failure to recognize benefits of digitized records over paper-based records for advancing the knowledge base in medicine needs to be overcome.

Panelists at last night’s forum also spoke of regulatory hurdles, overcoming privacy concerns, and the need to develop new models for evaluating longitudinal outcomes data to build into predictive models. Changes in reimbursement policies were noted, too.

The good news, however, is that computing power and complex analysis of huge amounts of data are not the factors that are holding back progress in personalized medicine.  The field of genomics has experience with big data and Moore’s law is on track to allow for the soon-to-be $1,000 genome to become the $10 or even $1 genome in another generation. All in all, the availability of longitudinal real world outcomes data stands out as the biggest problem.

How long will it take to overcome the remaining barriers to personalized medicine? That’s difficult to predict. But, the panelists presented an optimistic view of the future where a personalized approach to medicine can lead to a data-driven focus on maintaining wellness, not just treating illness.

For more on the Personalized Genome panel, see:

http://www.masshightech.com/stories/2012/02/06/daily37-Personal-genomes-hold-eventual-promise-for-treatments.html

http://www.chenpr.com/blog/uncategorized/stimulating-discussion-and-sold-out-evening-at-mitef/

Event Planning for 2012

At this eventful time of year, I thought I would hold off from sending a long post and instead focus on conference and event schedules. Don’t worry, the year-end review/look ahead post will be forthcoming after the 1st of the year.

There are so many good events to choose from, especially in the healthcare and health IT spaces, that it’s difficult to decide where to devote time-constrained resources. The Events page that we added to the Health Content Advisors site earlier this year lists all major events that I or my colleagues will be attending. At this point, only past 2011 events are listed, but we’ll update the list over the holiday period.

Somehow, I chose a fantastic mix of live events to attend last year and I hope to make a repeat appearance at all of these events in 2012. I’m making plans for #HIMSS12, February 20-24 in Las Vegas now and hope to add the SIIA IIS conference, January 24-25 in New York to the list for 2012.

When we update the Events page, we’ll add links to blog posts, pictures and videos from the events. As a preview, here’s a short video interview I did with HCPlive.com at the Health2.0 conference in San Francisco:

Also, please check out my previous post on Using Game Dynamics that includes a link to a video of my session at Data Content11 that focused on using game dynamics in market research and provides examples from healthcare research, including PatientsLikeMe.   

That’s it for now. Happy holidays and best wishes for a 2012 that exceeds your expectations!

Janice

Game On! Enliven Content with Game Dynamics

Anyone remember eWorld?  It was Apple’s attempt to create a search engine that was visual and fun. It didn’t work out, but Apple was ahead of its time in the mid-1990s. Now the time may just be right for eWorld-like next-gen visual and fun business information services.

I spoke of the dual advantages of applying techniques from the online game segment to enhance the engagement level of content and to collect more data about audience at InfoCommerce Group’s Data Content11 conference earlier this month.  The full presentation with video can be found here (minutes 4:30-12:32).

The presentation includes parallels from healthcare where companies like PatientsLikeMe are matching members of their patient community sites with relevant clinical trials. This is just one example of an online publisher that is serving as a matchmaker between its audience and researchers and creating value to all stakeholders as a result.

I saw eyes light up during my talk when I introduced the topic of applying game dynamics[1] to B2B and consumer health content to increase the engagement level and make the audience more valuable to researchers.  A “game layer” for business and consumer health information may seem inappropriate at first glance, but I suggest that borrowing some of the best features of popular games to make content more engaging, easier to navigate, and more personalized can pay dividends. The secondary benefits of collecting more information about your audience and their preferences as they interact with more responsive content are significant, too. Again to use examples from healthcare, if your audience includes the leading experts in a specialty area or a large group of patients with a specific disease or set of symptoms, serving as a matchmaker between your audience and market research firms could represent a new revenue stream, especially if you have compiled data that can be used to segment the audience better than alternatives that currently exist.

I thought of eWorld when I saw HumanaVille, on online resource for seniors who are Humana members. As I mention in my presentation, I’m not sure that a fun visual online interface is the answer to getting seniors engaged online, but it’s worth a try, especially if the alternative is a typical online directory. 

[1] For a primer on game dynamics, see this post: http://tomhumbarger.wordpress.com/tag/scvngr-game-dynamics-playbook/